TYMES TRUST ALERT
11 May 2010

Jane Colby FRSA
Executive Director
The Young ME Sufferers Trust
www.tymestrust.org

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NEW ISSUE OF MINI-VISION PUBLISHED
FOR ME AWARENESS DAY 2010

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We send everyone our very good wishes as we remember you all on ME
Awareness Day 2010.

Members and Partner Groups should find the latest MiniVision dropping on
their doormats for the Big Day. You can also read it in full colour here:
www.tymestrust.org/pdfs/vision2010-1.pdf.

There are several important matters I would draw to your attention which
are covered in MiniVision. One is the research that we have co-funded,
which is finally coming to fruition. We are very keen for the two papers
to be published so as to share the full results with you.

The next is the Learning Commitment Awards celebration in the House of
Lords on ME AWareness Day itself. These recognise the sheer perseverance
of children with ME. The Queen's Cousin Lady Elizabeth Anson, one of our
patrons, is presenting these awards.

Finally, I hope you will find the booklet we have sent out with
Mini-Vision helpful. This booklet revisits the 2002 Dept of Health Report
on CFS/ME. We are bringing you important excerpts from the Children's
Chapter of the Chief Medical Officer's Working Group Report, which,
although published, was never circulated by the Dept of Health. We feel
that the sections on Education and Child Protection, which we fought so
hard for when we were on the Working Group, are particularly good. We
hope this information will assist families, doctors and teachers. You can
find the booklet here: www.tymestrust.org/pdfs/revisitcmoreport.pdf.

The All Party Parliamentary Group on ME has also accepted our suggestion
that key recommendations of the Report which were not acted upon should
be implemented, and the APPG Legacy paper includes our recommendations to
help stop the many mistaken child protection procedures being taken
against families of children with ME.

More news soon.

Jane Colby

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Jane Colby is Executive Director of The Young ME Sufferers Trust.
She was a Headteacher for nine years, a member of the government
Chief Medical Officer's Working Group on CFS/ME and co-authored
ME/CFS In UK Schools, the largest epidemiological study of ME to
date. She is a member of the National Association of Educational
Inspectors, Advisers and Consultants (now ASPECT), a life member
of the National Association of Head Teachers and a Fellow of the
Royal Society of Arts.

Copyright (c) 2010 The Young ME Sufferers Trust