Tymes Trust Alert 2014-03 Message from Jane 11 May 2014 ====== Follow Jane on Twitter @JaneCColby or read her tweets at www.tymestrust.org ====== DEFENDING FAMILIES' RIGHTS Also: #AskJCC: Question & Answer for ME Awareness Day ====== DEFENDING FAMILIES' RIGHTS NEW POSTER: NO, YOU DON'T KNOW BEST The Young ME Sufferers Trust Defends Your Right To Choose Front : http://www.tymestrust.org/pdfs/ttnoposter.pdf Back : http://www.tymestrust.org/pdfs/tt25years.pdf Today we are launching our nationwide campaign to defend families' rights to look after their children in the way that is best for them. You can get involved on social media. Post the link to the poster on your Facebook page if you have one, and on any ME forum you use. Email it to friends and family. Spread it around Twitter. Also post the link to the back of the poster. An eight-year old child writes: 'You are meant to understand my illness but all you do is push, push, push. Nothing I do is ever good enough. [...] I worry about what you are going to tell us to do next. I think you should care more about the children who come to see you and try to understand what they are going through.' Altogether there are now 5 posters at http://www.tymestrust.org/tymespublications.htm#posters Post this link and, if you like, send for packs of the printed posters so you can display them around your area. Just £3.50 for 10. Email us with the message: 'I'm in!' We'd love to hear about how you contributed to the campaign. #AskJCC : ME AWARENESS DAY Q&A - EVERYONE INCLUDED Monday 12th May from 4pm. We are holding another virtual event so that all can take part, even if they are confined to their bed. As before, this is a Twitter Q&A. If you're not on Twitter you can still join in. Go to www.tymestrust.org, click on the link to @JaneCColby near the top of the home page and see my tweets in real time. You can email me short questions in advance, using the Contact Us form at www.tymestrust.org. I will tweet my answers on the day, so everyone will be able to read them. You don't have to sit at a computer, you can use your smartphone or tablet. Let's all meet up on the day. All good wishes for ME Awareness Day and beyond. Oh, and don't forget you can forward this Alert around too! Jane Jane Colby FRSA Executive Director The Young ME Sufferers Trust PO Box 4347, Stock, Essex, CM4 9TE www.tymestrust.org Tel: 0845 003 9002 Holder of The Queen's Award for Voluntary Service: The MBE for Volunteer Groups ====== READ ALL PREVIOUS ALERTS AND SUBSCRIBE TO MY LIST AT www.tymestrust.org To unsubscribe, send an email via the website Contact Us form. ====== You are welcome to redistribute or reprint this email without seeking our permission provided: 1) you do not abbreviate, add to, or change the text in any way; 2) the authorship information is retained; and 3) www.tymestrust.org is credited as the source. Jane Colby is Executive Director of The Young ME Sufferers Trust. She was a Headteacher for nine years, a member of the government Chief Medical Officer's Working Group on CFS/ME and co-authored ME/CFS In UK Schools, the largest epidemiological study of ME to date. She is a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts. Copyright (c) 2014 The Young ME Sufferers Trust