Tymes Trust Alert 2016-01 : YOUNG HEARTS DAY Message from Jane 27 November 2016 ====== TYMES TRUST'S YOUNG HEARTS DAY COMING UP! Tuesday 29th November - Would your child like a gift? NEW CHRISTMAS STICKERS FOR SALE 26+ GROUP ====== YOUNG HEARTS DAY COMING UP! Tuesday 29th November Well here we are again. It's exactly a year since I sent you one of my Alerts and it's good to be back with you. We have had such a busy year, and developed our presence on social media (daily news appears on Twitter @tymestrust and @JaneCColby and also on Facebook). So something had to be put on hold, and yes, it was my Alerts. I know you'll understand because all of us with ME need to pace ourselves. We hope you'll all be lighting a candle on Tuesday, and if your child with ME would like a gift, let us know, as we'll be having a gift packing session on Young Hearts Day itself. Some gifts have already gone out to those of you who have already asked. Please use the Contact Us form at www.tymestrust.org and give us full details ie name, age and address. For those who don't know the tragic story behind the very first Tymes Trust's Young Hearts Day - our day to remember children with ME everywhere - you'll find it on our Facebook public page at www.facebook.com/tymestrust. Terry Waite was with us on the day, and launched our book Young Hearts, which is reprinting now and will be available in a few weeks' time. It makes a lovely Christmas present. NB There is no need to join Facebook in order to read our posts. You can keep up with our latest news at any time by going to www.facebook/tymestrust. CHRISTMAS STICKERS As always, we have some lovely Christmas stickers for putting inside any Christmas card (even if it's one you bought from another charity!) or on the envelope. A traditional Christmas scene (NEW!) www.tymestrust.org/tmp/tt-christmas.jpg and Sleepy Puffins www.tymestrust.org/tmp/tt-puffins.jpg To get yours, just make any donation at www.tymestrust.org/donations.htm and let us know how many stickers you'd like and which design you prefer on our Contact Us form at www.tymestrust.org/contactus.htm. Don't forget to include your own details. 26+ GROUP Don't forget that parents and supporters are welcome to join our 26+ Group. You receive invitations to our events, and extra mailings. We were pleased to welcome some of our families to our House of Lords event with Nisai Learning this summer, where we launched our new GP leaflet and presented Awards. We also awarded the great journalist David Tuller - whose work on PACE and FITNET you may have seen - the Tymes Trust Award for Scientific Journalism. There will be a photo in our end of year Tymes Tidings, which our members will receive through the post. With all best wishes to everyone. Jane Jane Colby FRSA Executive Director The Young ME Sufferers Trust PO Box 4347, Stock, Essex, CM4 9TE www.tymestrust.org Tel: 0845 003 9002 Holder of The Queen's Award for Voluntary Service: The MBE for Volunteer Groups ====== READ ALL PREVIOUS ALERTS AND SUBSCRIBE TO MY LIST AT www.tymestrust.org To unsubscribe, or if you have received this Alert in error, please send an email via the website Contact Us form. ====== You are welcome to redistribute or reprint this email without seeking our permission provided: 1) you do not abbreviate, add to, or change the text in any way; 2) the authorship information is retained; and 3) www.tymestrust.org is credited as the source. Jane Colby is Executive Director of The Young ME Sufferers Trust. She was a Headteacher for nine years, a member of the government Chief Medical Officer's Working Group on CFS/ME and co-authored ME/CFS In UK Schools, the largest epidemiological study of ME to date. She is a life member of the National Association of Head Teachers and a Fellow of the Royal Society of Arts. Copyright (c) 2016 The Young ME Sufferers Trust